RHINELANDER - Medical research can help patients and their families understand a disease. But some diseases are so rare that there's not much help out there. A Rhinelander teen with a very rare disease wants to change that.
Arterial Tortuosity Syndrome affects less than 30 people in the world. Collin Schmieding from Rhinelander is one of them.
"Collin is one of the oldest documented living people with the disease and he's 18 now," said Collin's mother, Julie Larson.
ATS is difficult to diagnose. But the symptoms are similar in some people who have the disease.
"It's a disorder of lack of collagen which allows the veins and arteries to grow very tortuous and twisted throughout the body," said Larson.
People with ATS have a high risk of having an aneurism.
"They don't play sports, they don't go jogging, they don't do anything very physical for the fear of having an aneurism," said Larson.
Collin and his family didn't know anyone else who had the disease. A few months ago, they found a Facebook page for ATS. They were able to give advice to other families.
"I was able to share information. It wasn't all positive but it at least gave them some answers to their unknown questions because their kids are a lot younger than what my son is," said Larson.
The families started a non profit so they can send their kids to the Arkansas Children's Hospital for a genetic testing study.
"It's a combination of excitement and nervousness, just wondering generally what's going to happen," said Collin Schmieding. "It's just going to be so interesting to talk and interact with other people like me."
The family held a local benefit to raise money for the trip. They believe this study can help people understand the disease.
"It's been great to see the community come together for something we really need to have done. I know there's probably a lot more people out there that are undiagnosed at this time and we're hoping that with our case study, they can get a proper diagnosis," said Larson.
Collin hopes the benefit will let people know more about ATS.
"I just want people to know about this. It's such a strange reaction when I tell people [I have] ATS. It's just a giant question mark above their head," said Schmieding.
HARSHAW - Oneida County sheriff's deputies found three runaway sisters, ages 14, 14, and 12, in the woods in Harshaw just after 1 p.m. on Monday.
The sisters had been reported missing by their parents Monday morning. The parents had gone to wake the girls up for school, but instead found a note saying they had gone on an "adventure."
The missing girls triggered a search from the Oneida County Sheriff's Office Special Response Unit, Newbold Fire Department Search and Rescue, Minocqua Fire Department, Lake Tomahawk Fire Department, and Little Rice Fire Department.
RHINELANDER - A Rhinelander factory that makes smoke flavoring caught fire early Monday morning.
Shortly before 6:00 a.m., Rhinelander, Crescent and Newbold Fire Departments responded to a fire at Red Arrow Products on Rhinelander's west side.
An employee says there were about eight workers inside at the time.
No one was injured.
"Flames were coming out of a conveyor area as high as the roof. We made an interior attack and knocked that flame down. Came in from the other side of the partition wall, then made another interior attack and knocked that down," says Chief Terry Williams.
As of 7:30 a.m. Monday morning, firefighters were still working to make sure the flames were out.
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